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Articles by Topic
1-100     101-200     201-300     301-400     401-500     501-600     601-700  


title  
date 
author 
 00501
 FOXG1 Gene Disorder 9/11/2013 Heather Norwood
 00502 Alport Syndrome 9/16/2013 Lisa Blackstone
 00503 An Unknown Overgrowth Syndrome 9/17/2013 Patricia Ruhaak
 00504 Ella's Grace: Microcephalic Osteodysplastic Primordial Dwarfism Type I 9/20/2013 Karen Zipp
 00505 Ohdo Syndrome 9/24/2013 Rachel Nichols
 00506 A Perfect Poop: Imperforate Anus 9/24/2013 Erin Dickey
 00507 To Brace or Not to Brace? Bracing for Neuromuscular Conditions 10/21/2013 SA
 00508 Our Dandy-Walker Life 10/21/2013 Kathy LaBonte
 00509 The Gift of Speech 10/21/2013 Vanessa Garcia
 00510 True Love 10/21/2013 Tristin West
 00511 AFO Tips 10/22/2013 SA
 00512 Our Journey with Neuromuscular Scoliosis 10/24/2013 Joan Fichter
 00513 Osteoporosis and Osteopenia:  Not Just for Grandparents 10/28/2013 Joyce Clay
 00514 Turning on Hearing:  Thoughts on a Cochlear Implant 11/6/2013 Laura Martin
 00515 Giving Them Wings: A Boy and His Powerchair 11/6/2013 Katie Lindemann
 00516 Fun in the Community: Hanging Out Special Needs Style 11/21/2013 SA
 00517 Every Child Deserves a Chance to Play Baseball: The Fun of Miracle League 11/21/2013 Lisa Blackstone
 00518 Funny Alternative Uses for Medical Supplies 11/25/2013 Brandis Goodman and the FTA ladies
 00519 Why I am a Proud Preemie Mom: Finding the Good in Everything 12/10/2013 Laura Martin
 00520 The Pain Scale of Life: Helping Each Other Cope 12/10/2013 Vanessa Meinke
 00521 My Real Child 12/10/2013 Hillary Savoie
 00522 Snow Globe Pee: Sediment in the Urine 12/11/2013 SA
 00523 Every Day, We Choose Joy 12/12/2013 Vanessa Garcia
 00524 Losing Faith:  Coping Without God 12/26/2013 Rachel Nichols
 00525 Coping Through Faith 12/31/2013 Terra Atkinson
 00526 Solutions for Vomiting 1/21/2014 SA
 00527 Rare Disease Day 1/21/2014 Brianne McDonald
 00528 Taking the Work Out of a Blenderized Diet 1/21/2014 Julie Bombacino
 00529 You're Not Poking a Hole in My Kid! From Refusal to Begrudging Acceptance of a G Tube 1/26/2014 Nora Sauter
 00530 From Pancakes with Syrup to TPN: Our Daughter's Battle with Dysmotility 1/26/2014 Kate Sytsma
 00531 A Rare Disease - What's in a Name? 1/26/2014 Katia Luedtke
 00532 Child-Led Tube Weaning: Ditching Spencer's Tube 1/26/2014 Rachel Nichols
 00533 Celebrating Feeding Tube Awareness Week: For the Love of a Tubie 1/26/2014 Brandis Goodman
 00534 Dealing with Low Body Temperatures 2/17/2014 SA
 00535 Thwarting Murphy: 8 Humorous Ways to Avoid Hospitalizations 2/17/2014 SA
 00536 The Hospital Routine 2/19/2014 Stacy Riley
 00537 The Top Ten List for Hospital Frequent Flyers 2/23/2014 Anonymous
 00538 The Complexities of Coping 2/23/2014 Vanessa Meinke
 00539 Avoiding Hospitalizations Using Care Plans 2/23/2014 Lisa Blackstone
 00540 Children's Medicaid Waivers: A Preliminary Website 3/24/2014 SA
 00541 The Most Annoying Part of Special Needs Parenting 3/14/2014 Cathy McCann
 00542 EPSDT: 5 Little Letters to Get Everything Your Child Needs 3/14/2014  SA
 00543 A Resource Guide for Enteral Formula Coverage 3/14/2014  Traci Nagy
 00544 Book Review: Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Julie M. Hauer, MD 3/21/2014 SA
 00545 Aerophagia: From Eating Air to Eating Food 4/21/2014 Alice Fenner
 00546 To BiPAP or Not to BiPAP--That is the Question 4/21/2014 Jaime Crawford
 00547 Samantha’s Trach Story 4/21/2014 Sandra Walton
 00548 Managing Oral and Respiratory Secretions 4/22/2014 SA
 00549 Trach Basics:  Pediatric Trach Types 4/22/2014 Holly Thompson
 00550 The Pediatric Medical Marijuana Movement 4/22/2014 Cathy McCann
 00551 50 Feet of Freedom and Fun: Having an Active Child on Continuous Oxygen and other Respiratory Support 4/25/2014 Kate Systma
 00552 Overcoming the Trach Fear 5/2/2014 Shauna Bryner
 00553 GEMSS: Genetic Education Materials for School Success 5/22/2014 SA
 00554 When Less Is More: Opting Out of Therapies, School, or Doctor Visits 5/22/2014 SA
 00555 Tube Feeding in School 5/22/2014 Brandis Goodman
 00556 A School for Blue Roses 5/24/2014 Allison Kidd
 00557 Your School Experience CAN be Positive! 5/27/2014 Rachel Nichols
 00558 Homebound Instruction for Children who are Medically Complex 5/28/2014 SA
 00559 Behavior Modifying Medications: A Parent's Dilemma 6/12/2014  Anne Couldridge
 00560 Hope 6/26/2014 Ashley Bernier 
 00561 Fear 6/26/2014 April Hibberd 
 00562 Determination 6/26/2014 Melissa Brown
 00563 Happiness 6/26/2014 Kate Lindemann
 00564 Helplessness 6/26/2014 Trina Ostrander 
 00565 Picking Up the Pieces of Peace 6/26/2014 Vanessa Meinke
 00566 Ordinary Joy 6/26/2014 Brenda Allair
 00567 Envy 6/26/2014 Nicole Gerndt
 00568 Caregiving Stress:  The Beautiful Mess 6/26/2014 Deborah Arrona
 00569 Ticket Please: The Caregiving Rollercoaster 6/30/2014 Jen Christoff
 00570 Bleeding Water from a Stone: Budgeting, Being Frugal, and Saving on a Limited Income 7/22/2014 Keely Miller
 00571 Special Needs Trusts and Financial Planning 7/22/2014 Traci Nagy
 00572 A Day in Special Needs Clinic  7/22/2014 Tracy Felix
 00573 Funding Sources for Uncovered Supplies and Equipment 7/23/2014 SA
 00574 Top 8 Super Powers of Special Needs Parents 7/28/2014 SA
 00575 Five Rules to Live By With a Disability 8/15/2014 Nicole Small
 00576 Family Retreats for Stressed Families 8/15/2014 Samantha Hardy
 00577 Making Choices: Beginning the Augmentative Communication Process 8/25/2014 Melissa Longshore
 00578 The “Ah-ha” Communication Moment 8/25/2014 Barbara McClaren
 00579 The Path to Communication 8/25/2014 Krista Perleberg
 00580 Communication with Hearing Loss 8/25/2014 Rachel Zook
 00581 A Letter to my Daughter on Finding Your Voice 8/25/2014 Kate Sytsma
 00582 How Do You Know Your Child Understands? 8/27/2014 Jody Prunty
 00583 More than a Mom 9/17/2014 Melissa Longshore
 00584 Operation Transformation: Kidney Transplant in a Child Who is Medically Complex 9/17/2014 Tina O'Kelly
 00585 The Effects of Chronic Kidney Disease on Children Who are Medically Complex 9/17/2014 SA
 00586 The Pee Saga: Our Life with Vesicoureteral Reflux 9/25/2014 Karla Cunnigham
 00587 Our Journey with Kidney Stones 9/30/2014 Tracy Felix
 00588 Health Insurance Premium Payment (HIPP) Programs: Assistance Paying for Private Insurance for Kids with Complex Medical Issues 9/30/2014 SA
 00589 Counting Smiles Not Days: Bringing Palliative Care to Our Local Hospital 10/21/2014 Lisa Blackstone
 00590 Rainbow Connection: Questions about Adult Programs for Young Adults with Special Needs 10/21/2014 Bebe Bode
 00591 Palliative Care or Complex Care: Which is Right for Your Child? 10/21/2014 SA
 00592 The Complexities of Moving a Child with Special Needs 10/21/2014 Jennifer King
 00593 Palliative Care and Respite Houses: A Desperate Need in the United States 10/28/2014 SA
 00594 The Long Road Ahead 10/24/2014 Kathy Sebright
 00595 8 Ways to Help Families in the Hospital 11/19/2014 Tracy Felix
 00596 Programs for Children with Special Health Care Needs: Another Funding Option through Title V 11/19/2014 SA
 00597 Attaching Medical Equipment to Wheelchairs and Strollers 11/19/2014 SA
 00598 Obtaining a Wheelchair or Medical Stroller 11/21/2014 Kristy High
 00599 Shopping for Wheels: From Trepidation to Acceptance 11/21/2014 Kristina White
 00600 Wheelchair Poetry: Reactions to Children in Wheelchairs 11/24/2014 Melissa Longshore

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